Our Trisomy 18 Journey: The Planning

You never realize how strong you are until strong is the only choice you have. Bob Marley. The emotions a mother feels after her child dies due to Trisomy 18 or other fetal abnormalities.

This part of our journey was so very difficult. I cannot explain the the agony I felt in knowing our sweet boy was alone, in refrigeration, just waiting. Waiting for us to figure out what to do with him and how to honor his short but very important life.

It felt like my heart was being ripped out of my chest every time I thought about him laying there, alone and cold. Thanks to a loving and compassionate funeral home, I knew he was safe, but even so, it was agonizing. I wanted to hold him. I wanted to comfort him. I wanted to keep him warm. I wanted him to return to my arms, even if just for a moment, to tell him how much I loved him and how much I missed him already.

I laid in bed crying and remember physically reaching both arms out to the sky, begging God to hand him to me; to let me hold him just one more time.

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