Tag: Edwards Syndrome

Our Trisomy 18 Journey: Empty Arms

My dad and one of my sister’s came in and honestly, I think at that point, he was still alive. Shortly after, I had each of my daughter’s come in to meet him, and essentially, to also say goodbye. I kept them separate so…

Our Trisomy 18 Journey: The Planning

This part of our journey was so very difficult. I cannot explain the the agony I felt in knowing our sweet boy was alone, in refrigeration, just waiting. Waiting for us to figure out what to do with him and how to honor his…

Our Trisomy 18 Journey: The Amniocentesis

My husband and I called up my parents, as we always do in a crisis, and asked if they could come spend the night and take our daughters to school in the morning so we could get to the 7:30 a.m. amniocentesis. Again, it…

Our Trisomy 18 Journey: The Anatomy Ultrasound

May 8th was perhaps the hardest day of my life. After the phone call the night before, I asked my mom to come sit with me at the anatomy ultrasound. She was running behind because of traffic, and my heart was beating out of…

Our Trisomy 18 Journey: The Phone Call

It was around dinnertime and I was struggling to get food ready for the kids before the older one needed to head off to one of her activities. A typical evening in the life of a mom. The phone rang and it showed a…