Category: Uncategorized

Our Trisomy 18 Journey: Empty Arms

My dad and one of my sister’s came in and honestly, I think at that point, he was still alive. Shortly after, I had each of my daughter’s come in to meet him, and essentially, to also say goodbye. I kept them separate so…

Battling Grief After the Loss of a Child

From my life’s experience, I believe that there is depression and that there is grief. While you certainly can have both at the same time, the two are not interchangeable. I am grieving. For many years, I struggled with depression and on many occasions,…

The struggles of dealing with a small child after the death of a sibling

As we were driving home today, my five-year-old asked, “Who is going to blow out the candles on Gabriel’s birthday?” I just looked in the rear-view mirror, faked a smile, and said, “you are.” 

Our Trisomy 18 Journey: Hello and Goodbye

The amount of emotion we felt on this day is indescribable. No parent, no person, should ever have to both welcome their child into this world and then have to hold them as they die. You are so overwhelmed with joy and with heartache…

Our Trisomy 18 Journey: The Impossible Choice

Frankly, my choice when facing a Trisomy 18 diagnosis is no one’s business but my own. But being put in a position where I was asked to make an impossible decision has opened my eyes and my heart to others and I urge you…

Our Trisomy 18 Journey: The Amniocentesis

My husband and I called up my parents, as we always do in a crisis, and asked if they could come spend the night and take our daughters to school in the morning so we could get to the 7:30 a.m. amniocentesis. Again, it…

Our Trisomy 18 Journey: The Anatomy Ultrasound

May 8th was perhaps the hardest day of my life. After the phone call the night before, I asked my mom to come sit with me at the anatomy ultrasound. She was running behind because of traffic, and my heart was beating out of…

Our Trisomy 18 Journey: The Phone Call

It was around dinnertime and I was struggling to get food ready for the kids before the older one needed to head off to one of her activities. A typical evening in the life of a mom. The phone rang and it showed a…

And so the Journey Begins

Diverse group of people put their hands together to show collaboration and teamwork

“…by demonstrating that all peoples cry, laugh, eat, worry, and die, it can introduce the idea that if we try and understand each other, we may even become friends.” -Maya Angelou I believe that by talking to one another and genuinely listening to what others…