Category: Edwards Syndrome

Battling Grief After the Loss of a Child

From my life’s experience, I believe that there is depression and that there is grief. While you certainly can have both at the same time, the two are not interchangeable. I am grieving. For many years, I struggled with depression and on many occasions,…

Our Trisomy 18 Journey: My Baby’s Funeral

“Here I am, Lord. Is it I, Lord?” The sounds of children’s voices echoed through the cathedral at my daughters’ school as my husband, dressed in black, carried our son Gabriel towards the altar. My two daughters and I, along with our family members…

Our Trisomy 18 Journey: The Planning

This part of our journey was so very difficult. I cannot explain the the agony I felt in knowing our sweet boy was alone, in refrigeration, just waiting. Waiting for us to figure out what to do with him and how to honor his…

Our Trisomy 18 Journey: The Amniocentesis

My husband and I called up my parents, as we always do in a crisis, and asked if they could come spend the night and take our daughters to school in the morning so we could get to the 7:30 a.m. amniocentesis. Again, it…

Our Trisomy 18 Journey: The Anatomy Ultrasound

May 8th was perhaps the hardest day of my life. After the phone call the night before, I asked my mom to come sit with me at the anatomy ultrasound. She was running behind because of traffic, and my heart was beating out of…

Our Trisomy 18 Journey: The Phone Call

It was around dinnertime and I was struggling to get food ready for the kids before the older one needed to head off to one of her activities. A typical evening in the life of a mom. The phone rang and it showed a…