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Month: June 2018

Our Trisomy 18 Journey: Hello and Goodbye

The amount of emotion we felt on this day is indescribable. No parent, no person, should ever have to both welcome their child into this world and then have to hold them as they die. You are so overwhelmed with joy and with heartache…

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Our Trisomy 18 Journey: The Impossible Choice

Frankly, my choice when facing a Trisomy 18 diagnosis is no one’s business but my own. But being put in a position where I was asked to make an impossible decision has opened my eyes and my heart to others and I urge you…

Dealing with a pregnancy announcement after losing your child

I am so very happy for you and your family, but please do not be offended if I need some space right now. Your child is an absolute blessing to this world and I hope to rejoice with you someday soon, but I need…

Our Trisomy 18 Journey: My Baby’s Funeral

“Here I am, Lord. Is it I, Lord?” The sounds of children’s voices echoed through the cathedral at my daughters’ school as my husband, dressed in black, carried our son Gabriel towards the altar. My two daughters and I, along with our family members…

Our Trisomy 18 Journey: The Planning

This part of our journey was so very difficult. I cannot explain the the agony I felt in knowing our sweet boy was alone, in refrigeration, just waiting. Waiting for us to figure out what to do with him and how to honor his…